Welcome to UKHR

Please bear with us we are re-designing our site. The new site should be complete in a few days.

Welcome to the UK Histiocytosis Registry.

If you have been diagnosed with histiocytosis, we hope you will consider donating your information and samples for research.

Further information for Participants can be found under the Participant Information Index, where you can also complete our online enquiry form.

Once we have received your form our Project Manager will contact you.

General Enquiries to: Project Manager, sarah.pagan@nhs.net.

Our Chief Investigator is Professor Matthew Collin  

The aims of UKHR are:

  • Establish a cohort of well-characterized histiocytosis patients to facilitate epidemiological, natural history and health economic studies.

  • Provide information about the incidence, demography and healthcare burden of histiocytosis to facilitate planning, commissioning and resource allocation.

  • Learn more about the value of genotyping in disease subtypes, risk factors, response to therapy and personalised medicine.

  • Promote more consistent diagnoses, develop guidelines for best practice, and facilitate entry into trials.

  • Encourage collaborative research nationally and internationally on histiocytosis.

If you are looking for information on histiocytosis, you may wish to view:

Histio UK

Your support is vital to ensure that we can continue to deliver our Research and Information Programmes. Thank you.