Welcome to UKHR

Our research programmes provide a beacon of hope for the many children and adults battling Histiocytosis, to ensure this research continues we ask you to support the UK Histio Registry.
Thank you.

Welcome to the UK Histiocytosis Registry.

If you have been diagnosed with histiocytosis, we hope you will consider donating your information and samples for research.

Further information for Participants can be found under the Participant Information Index, where you can also complete our online enquiry form.

Once we have received your form our Project Manager will contact you.

General Enquiries to: Project Manager, sarah.pagan@nhs.net.

Our Chief Investigator is Professor Matthew Collin  matthewcollin@nhs.net.

The Aims of UKHR are:
  • Establish a cohort of well-characterized histiocytosis patients to facilitate epidemiological, natural history and health economic studies.
  • Provide information about the incidence, demography and healthcare burden of histiocytosis to facilitate planning, commissioning and resource allocation.
  • Learn more about the value of genotyping in disease subtypes, risk factors, response to therapy and personalised medicine.
  • Promote more consistent diagnoses, develop guidelines for best practice, and facilitate entry into trials.
  • Encourage collaborative research nationally and internationally on histiocytosis.

If you are looking for information on histiocytosis, you may wish to view:  HistioUK

Your support of Histio UK is vital to ensure that we can maintain the UK Histio Registry which an essential research resource.
Thank you.